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  1. Hi Cat
    Thanks for your personal journey about pain.
    I myself have lived with chronic fatigue and fibromyalgia for over 20 years and now in my late 50’s I am now living with chronic arthritis in my hands especially around my thumbs, wrists and fingers. The pain is so bad most days that it makes working as an administrator very difficult – using a pen – well what a nightmare, especially in recent weeks the crunching and bone grinding in my right thumb when I write and the sharp pains I get. The pain is so bad sometimes that it makes me cry and I also suffer at times with the depression of always being in pain and finding it hard to do even the simplest of things like hanging out the washing or trying to open a jar or bottle of something. I have even taken to asking perfect strangers to open things for me. Stay strong through your pain. What’s the saying if it doesnt kill you only makes you stronger!!! I sometimes wonder about that!!

    1. Hi there Susan and I am so sorry to hear that you have had a long journey with pain too, and I’m getting the joint issues in my thumbs too. I know how pain can wear you down at times – do you have some close friends who can support you when things are particularly bad? Sending you lots of love xx

  2. Wow Cat – What a life of pain and suffering you have had to endure! And I thought my back issues were tough! Thank you for sharing so openly and honestly with us all. I have such huge respect for all the awesome work you do! Hugest blessings! Laurie

    1. Thanks Laurie and back issues are no laughing matter – my husband has suffered dreadfully with his for years.
      I appreciate your encouragement and respect your work too! x

  3. Hi Cat,
    Great post. I can so relate, as I live with chronic pain each day as well. Prior to Ehlers Danlos Syndrome, I had Pudendal Nueralgia, or pelivc pain and burning due to compression of the Pudendal nerve in the Pelvis. It was Horrible! I know what IC is, and that was one of the things I was tested for. God, that doctor sounded horrible! I have dealt with a few bad ones. You are so right about invisible diseases, with trigger points you cant see, and me without a walker or some other visual, people assume you are well.
    I have such respect for you as well, not giving in or being defined by the disease. I feel the same way. Got to keep plugging along!
    jess xx

    1. Hi there Jess I am so sorry to hear what you live with! I looked up Pudendal Nueralgia and the symptoms are so similar to what I deal with – big hugs to you.

      There’s a story about that awful doctor too – at the time, our family doctor was a lovely Indian man who attended my parent’s church. When I was raced to the hospital by ambulance, my mother called him and he raced over too and said to mum that he would stay with me during the surgery. At the time, I thought it was a bit over the top as I had a specialist looking after me, however once the news broke about the “Butcher of Bega” years later, I realised that I was probably spared goodness knows what because of this man.

      Big hugs and respect for you too Jess x

  4. Thank you for your transparency. I know so many that live with chronic pain and my heart is with them. In can really happen at any time yo any of us. This was a great article and listened to your podcast on it as well. You’re a blessing to many Cat!


    1. Thanks so much Melanie. There are definitely so many more people quietly suffering out there and yes, it can absolutely happen to anyone. It’s always good to remember that saying about how we should always be kind as we don’t know what someone else is going through.

    1. Thanks Libbie – it’s not well known at all which is one of the reasons why I felt that I should start talking about it.

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